International Summer School on Rare Disease Registries and FAIRification of Data

23/09/2019 - 27/09/2019 Giorno intero

ELIXIR-IIB is pleased to announce the "International Summer School on Rare Disease Registries and FAIRification of Data". The Course is part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP-RD) and it is organised by the Istituto Superiore di Sanità of Italy in close collaboration with the ELIXIR-IT and the ELIXIR-NL Nodes, among other JPR partners. IMPORTANT DATES: Deadline for applications: 20 June 2019 Course date: 23-27 September 2019 VENUE: Istituto Superiore di Sanità, Rome, Italy The training course is open to the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals and rare disease patients representatives. Registration is possible for:

  • the first training module (“Rare Disease Registries”, September 23-25, 2019)
  • the second training module (“FAIRification of Data”, September 26-27, 2019)
  • the entire course (“Rare Disease Registries” and “FAIRification of data”, September 23-27, 2019)


Istituto Superiore di Sanità, Via Giano della Bella 34, Rome, Italy


- Online registration form

- Event website

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