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Focus Groups

Informal groups where to share interest on specific topics. 

Research Data Alliance (RDA) Activities

Research Data Alliance is an organisation carrying momentum worldwide. The purpose of this group is to make sure that the ELIXIR point of view is presented in the RDA community.

  • Matteo Chiara:
  • Marilù Chiusano:

Machine Learning (AI)

The ELIXIR Machine Learning Focus Group was initiated in October 2019, in order to capture the emerging need in Machine Learning expertise across the network.

  • Silvio Tosatto:
  • Federico Zambelli:
  • Ester Pantaleo:
  • Alexander Miguel Monzon:

Learning Paths


ELIXIR works with its Member countries to make open data and open science realities in terms of digital skills, innovation, health, food security and the environment. This group aims to empower ELIXIR partners in evaluating and communicating their performance and impact, in support of the long-term sustainability of national Nodes.

  • Francesca De Leo:

Innovation and Industry

The ELIXIR Innovation and Industry Focus Group is an internal group for ELIXIR members to learn about engagement of external stakeholders (such as the private sector), initiatives in the ELIXIR Industry Programme and how to contribute, and exchange experiences on local industry and innovation programmes in the Nodes.

  • Francesca De Leo:

Health Data

The Health Data Focus Group aims to be the incubator of ideas relating to health data and is ELIXIR’s formal channel to organise this.

Health data includes:

  • omics
  • clinical (structured and unstructured EHRs, and clinical imaging)
  • lifestyle/patient questionnaire
  • administrative
  • real-world wearables/mobile devices data.

All data will be anonymised/pseudonymised and consented for research. The collection of identifiable routine clinical data in healthcare systems is out of scope.

  • Emidio Capriotti:
  • Marilù Chiusano:

FAIR Training

This Focus Group aims to implement FAIR principles in training (FAIR: Findable, Accessible, Interoperable and Reusable). The group contains members from ELIXIR and from the international community.

  • Allegra Via:
  • Loredana Le Pera:


The European Open Science Cloud (EOSC) is a large programme that aims to transform European science along three major axes: 

  1. Consolidation of e-Infrastructure services and position these services as an embedded “supply-chain” for data intensive scientific collaborations.
  2. Open Science in practice – transform the Open Science policies into scientific practice.
  3. Integrate the user-focussed services from research infrastructures – with their user communities – to enable interdisciplinary research aligned with the major societal challenges.
  • Giacinto Donvito:
  • Marilù Chiusano:

Environmental Impact

This Focus Group will explore ways to assess and minimise the environmental impact of ELIXIR, and of data handling in general. We will raise awareness about the issues and solutions. We will also explore how ELIXIR can help interdisciplinary research on the environmental impact on human health and biodiversity.

  • Marilù Chiusano:

Cancer Data

The objective of this Focus Group is to discuss the common bioinformatic needs that Use Cases of working within the cancer field pose to the ELIXIR Nodes; to afford the opportunity to proactively identify the topics at the intersection of ELIXIR’s priorities and this European research area. This will enable ELIXIR to dynamically map the gathered information towards these topics where possible.

  • Emidio Capriotti:
  • Marilù Chiusano:


The process of biocuration, performed by expert biologists, is the life-blood of knowledgebases. The work of biocurators involves identifying and reading the full text of key papers, then extracting relevant information with supporting evidence.

The Biocuration Focus Group is establised to provide the supporting mechanism driving this scientific theme in the 2019-2023 Scientific Programme, and widen the applicability of ELIXIR activities to data resource developers/operators across the Nodes and their constituent institutions.

  • Federica Quaglia:
  • Luana Licata:

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